Just Get Over It

Do you know what words have never helped anyone get over their hurt, their pain and their grief? This phrase right here…“Just get over it.” Yet this is a phrase I have repeatedly heard others say to parents who are grieving the loss of a dream of a typical childhood and the challenges their child will face growing up.

Wouldn’t it be nice if in the midst of your grief, you could flip a switch and say, “I’m over it.” I will never grieve this again.  Life is good and I have completely healed.

However, that is not the case for many parents who have a child impacted by special needs. Sure, there will be periods where the grief subsides and the parent is able to dream a new dream and appreciate the incredible person that their child is but then there will be other moments when grief rears its head again and floors us. The grief is chronic.

Just get over it? How do I just get over it?

My son cut his leg this week while on a bike ride. What if I told him to just get over it and go on with his day? There would have been stones, dirt and grease from the bike chain left in the cut. What would have happened next? If left the way it was, the cut would have attracted flies and eventually become infected.

The reality is if I choose to just get over it, I am choosing to ignore it and just bury the pain. If I bury the pain, it will become “infected” and it will come back. It will come back as anger, resentment, health issues, sin issues and the list goes on.

When my son cut his leg, instead of telling him to “just get over it”, I listened to him. I let him share from his perspective what happened and then he washed off his leg.

Some of you may find yourself at this point of grieving. If you do, be assured that it does not mean that you love your child any less.

Healing takes time and we all heal at different rates. That is why a husband and wife can experience the same event but be in different places emotionally.

If you find yourself in this place of grief, I would encourage you to take a look at the Psalms and laments. It may even  be helpful for you to write your own lament. If you find yourself stuck in this place of grieving, it may be time to meet with a counselor so you can get that listening ear.

But whatever you do….don’t “just get over it” because you won’t.

Written by Jonathan McGuire

Jonathan McGuire  is  the father of two sons and the co-founder of Hope Anew, a nonprofit that comes alongside the parents of children impacted by disability on a spiritual and emotional level. You can follow Hope Anew on Facebook here.

 Hope Anew has launched the Hope Anew Online Community and would love to have you be a part of it! You can learn more at www.HopeAnew.com.  Due to COVID-19, Hope Anew is waiving all membership fees for the community!

Chronic Grief and the Holidays

Next week is Thanksgiving and Christmas isn’t far behind! I love these holidays but for many families the holidays can be a sad time as they grieve loved ones who have been lost, relationships that have been severed or other difficult situations.

For families with children impacted by disability, this can also be a difficult time.  There can be a grieving of lost family traditions, the mourning of distanced family relationships due to lack of understanding of your child’s disability, and grief related to how the disability impacts your child.

Don’t hear me say that there aren’t many wonderful things about our children or that they are somehow less than. I’m NOT saying that at all. Our children are fearfully and wonderfully made but that doesn’t mean we don’t grieve. This grief can even become chronic. 

You may be thinking, “What is that? Chronic grief?”

With “typical” grief there is a definitive start point and while the timeframe varies from person to person, the person grieving eventually arrives at a place of acceptance and the grief generally diminishes. It may spike on significant dates such as birthdays and anniversaries. 

With “chronic” grief, the loss is a living loss. At its core, there is a discrepancy between what is perceived as a painful reality on one hand and continues to be dreamed of on the other hand. The loss is ongoing since the source of the loss continues to be present.

Lorna Bradley had the following to say about the grief we experience as parents in this disability journey:

“All parents have hopes, dreams and expectations for the life of their child.  There is an expected order to life with developmental milestones leading toward maturity and independence. With every milestone that is not met, every hardship the child faces related to their need, every struggle the parent faces as they care for their child, the parent is thrown back into grief with all its ferocity. The parent will eventually develop new dreams for their child and family but will always mourn the child and family life that never was.”

Are there things you are grieving this holiday season? Be assured, that you have a savior who gets it. Jesus was acquainted with grief intimately.

Isaiah 53:3 – A man of sorrows acquainted with deepest grief.                               

Hebrews 2:18  -Jesus was tested & suffered and is able to help those who are tested.     

John 11:33-35 – Jesus wept over the death of Lazarus.

Hebrews 5:7-9 - He offered prayers & pleadings with a loud cry & tears to the One who could rescue him from death.             

John 12:27 – My soul is deeply troubled.                  

Matthew 26:37-38 – He became anguished & distressed. His soul was crushed with grief to the point of death.

In this Thanksgiving and Christmas season, if grief is hitting you extra hard. Be assured that you are not alone. God is our helper and has given us a comforter.

Written by Jonathan McGuire

Jonathan McGuire  is  the father of two sons and the co-founder of Hope Anew, a nonprofit that comes alongside the parents of children impacted by disability on a spiritual and emotional level. You can follow Hope Anew on Facebook here.

Hope Anew has launched the Hope Anew Online Community and would love to have you be a part of it! You can learn more at www.HopeAnew.com.

Four Ways To Cope When You Are In Survival Mode

How do we think about the future when we are living in so much chaos? Do you ever feel like you are living from one moment to the next, just taking one more breath and trying to put one foot in front of the other? Sarah and I have been in that place of just being in survival mode. Many parents that we talk to also find themselves there, in that place of just trying to make it through the next second and where making it through dinner qualifies as a long range goal.

 There was an eight day study done on mothers of adolescents and adults with autism. At the end of the study, it was found that their stress levels were comparable to combat soldiers! Some of you just breathed a sigh of relief when you read that. I know this study personally resonated with me. It was a relief to know that I am not weak and I so identified with the picture of a combat vet in a war zone.

Common symptoms of combat stress that soldiers experience are:

• Hyper-startle (An exaggerated response when something surprises you)

• Hyper-vigilance (Being always on guard or super-alert)

• Trouble with focus and/or memory

• Flashbacks (re-experiencing stressful events)

• Hallucinations (seeing, hearing or feeling things that aren’t real)

• Nightmares and trouble sleeping

• Depression and apathy

• Guilt and shame

• Withdrawing or avoiding others

• Irritability and angry outbursts

• Headaches and exhaustion

• Extreme anxiety (excessive fear and worry)

Do any of these sound familiar? If so, how many? Maybe some of these things have become so ingrained in you that you have just taken it for granted that that is who you are.

Hyper-vigilance became a way of life for us, beyond just being a helicopter parent. Back to that image of being a combat vet, Sarah often described our marriage after our journey in disability began as the two of us being in a “fox hole” together as we were constantly on alert and fighting for our family. 

In an article in Navy Medicine Live, it was shared that if not addressed, these symptoms can morph into something else, like PTSD or substance abuse.  

So what do we do when we struggle with one or more of the above symptoms?

First, implement a self-care plan.

Yes, I know  you already know this but have you done it? Stress negatively effects every one of our body systems and leads to ongoing health issues. In this video, I share 5 things anyone can do as they implement their own self-care plan. You can also send me your email address and I would be happy to send you a free e-booklet I wrote with the same information.

Second, as much as possible, implement a routine.

On average, adults are making 35,000 decisions a day. By eliminating some of those decisions through having a routine, you will be better equipped to handle the big decisions and the “surprises” that frequently arise. What are some decisions you can streamline?

President Obama was a fan of this. He once shared, “You’ll see I wear only gray or blue suits. I’m trying to pare down decisions. I don’t want to make decisions about what I’m eating or wearing. Because I have too many other decisions to make.”

Third, find a community or select group of friends who “get it”.

Commander Carrie Kennedy a neuropsychologist and aerospace experimental psychologist shared that the real key to effective management of combat stress and long term adjustment was that veterans have to be in regular contact with other veterans.  Veterans need to be able to talk over difficult  experiences with members of the same unit.

 If you are unable  to find that group who “gets it”,  Hope Anew wants to help. We are in the process of building an online community that will launch later this year. This community will be a “laugh together, cry together, pray together” community. It will provide you with those connections who you can be real with and who will get it. If this something that interest you, again message me and we will be sure to let you know when it is launched.

Finally, as believers we have an eternal hope.

We have a Savior who loves us and we know there will eventually be a day where there is no more crying, no more pain and no more sorrow. As we long for that day, it helps to look for things daily that will instill hope and bring glimpses of joy.

You won’t be able to dream and plan for the future until you can manage the stressors of today. If you feel like you are just in survival mode, what is one thing from above that you can do today that will help with your stress levels?

 If the above symptoms persist, become worse or you begin to have self-destructive behavior or suicidal thoughts, please reach out to a professional immediately for help.

Jonathan McGuire  is  the father of two sons and the co-founder of Hope Anew, a nonprofit that comes alongside the parents of children impacted by disabilities on a spiritual and emotional level.

You can follow Hope Anew on Facebook here.