One Simple Question That Can Change Your Life…and the lives of those around you!

Last week I shared that my theme word for 2021 is thankful and to help me toward that goal, I’m listing 3 things I’m thankful for each day. That is one step. But it’s not just a “list 3 things and move on with the day”, checkmark, goal accomplished. Done.

No, in making thankfulness a habit and cultivating a heart attitude of gratitude it is my goal that the act of starting my day with thoughts of thankfulness will then help thankfulness carry on into my day with choosing thankfulness in situations that would otherwise cause irritation, annoyance, depression, discontent, or hopelessness.

Our family is currently living in an RV and touring the country for 10 months while we work and school fulltime. Yes, it’s pretty incredible. But it also means we are sharing one bathroom. One morning last week, I needed to do my hair and plugged in the curling iron to warm, but since my kids hadn’t gotten up and been through the bathroom yet I thought I’d give them a chance before I started on my hair. I have a lot of hair and it’s a 30-minute process. I got them moving and started working on breakfast in the kitchen while waiting for them to quickly use the restroom and vacate it.

 The next thing I knew, one of my sons was showering. He doesn’t normally shower in the morning and I hadn’t expected or anticipated that. He’s also not quick about showing, so my day and planned schedule was now delayed by 30 minutes. My immediate reaction was irritation, annoyance, and criticalness about his thoughtlessness.

 After ascertaining that he had turned off my curling iron and the RV was not about to catch fire from his setting clothes on a hot iron, I recognized my negative emotional state and direction of my thoughts. I asked myself, “What can I be thankful for in this situation?” Immediately I thought of how thankful I am that I have a son who desires to be clean and takes responsibility for his personal cleanliness AND that I don’t have to push, fight, or cajole him into it! What a blessing he is! How proud I am of him!

One simple question to myself and wow, what a change in thoughts and emotions! And, what a different mom that kid had when he got out of the bathroom than if I hadn’t asked myself that question. I know I want to be the second mom and not the first mom on a regular basis and that’s the mom and wife my family wants too. It’s also the daughter my Father will be more pleased with because that’s who He has designed and enabled me to be. Yet, it all came from a simple question and changing my focus.

Who do you want to be? What characteristics do you want to cultivate in your life? Is thankfulness a challenge for you like it is for me? If you haven’t already, we’d love to have you join the Hope Anew Online Community and take part in the January Thankfulness Challenge!

Sarah McGuire  is the Mom of two boys and co-founder of Hope Anew, a nonprofit that guides parents to Christ-centered hope and healing. You can follow Hope Anew on Facebook here. You can also check out Hope Anew’s Online Community here!

Due to COVID-19, Hope Anew is waiving all membership fees for the community!

Three Things That Give Me Hope – Part 2

Have you ever heard the saying that "it can be hard to see the forest through the trees?" To me, that phrase has meant that it can be easy to get bogged down in the details and lose the big perspective. That can be true in our journey too. 

Sometimes, we get so bogged down in the day to day...the researching, the appointments, the (fill in the blank) and we miss the good that is happening. The life giving things. The hope filled things.

Does this sound familiar?

When I lift weights, those muscles I am using grow stronger. This is the same with how we think. When we focus on the negative, those negative pathways in the brain become stronger. It is harder to see the good.

You may be able to recall conversations with people where the negative pathways have become really strong. In those interactions, it can be hard to steer the conversation in a positive direction and you just leave the conversation feeling blah and hopeless. The converse is true when you sit with people who are joy-filled.

This idea of building a positive, hope-filled mindset is a Biblical idea.

Finally, brothers and sisters, whatever is true, whatever is noble, whatever is right, whatever is pure, whatever is lovely, whatever is admirable—if anything is excellent or praiseworthy—think about such things.

Philippians 4:8 (NIV)

It can be hard to see the good things going on in the world and more specifically, it can be hard to see the good things that are going on in your life…especially if you are living from one crisis to the next.

Sarah has recently began asking each person in our family what one good thing is that we appreciate today. Sometimes a family member shares something big. Sometimes it's a rougher day and the good thing is that the sun is shining.

Sometimes finding the good becomes easier when we look outside of our circumstances and the day to day. It depends where you look though. I wouldn’t recommend looking at the news or even at Facebook.

The best way to find the good, is to look for where God is at work. Find a mission organization or nonprofit that aligns with a cause you are passionate about and sign up for their newsletter. You will have stories of how God is at work sent straight to your inbox or delivered to your front door. Also, find positive people with whom you can associate.

When we start seeing those good things that are happening in our lives and when we start seeing the good things that God is doing around the world, it starts to reframe how we think. It starts to restore hope. 

This week I would like to challenge you to look for one good thing that is happening in your life each day.

Written by Jonathan McGuire

Jonathan McGuire  is  the father of two sons and the co-founder of Hope Anew, a nonprofit that comes alongside the parents of children impacted by disability on a spiritual and emotional level. You can follow Hope Anew on Facebook here.

Hope Anew has launched the Hope Anew Online Community and would love to have you be a part of it! You can learn more at www.HopeAnew.com.  Due to COVID-19, Hope Anew is waiving all membership fees for the community!

When Our Lives Are In Upheaval

September makes me think of fall, even though it still feels like summer to start out. I love fall - pumpkins, cooler breezes, apple cider, campfires, hot chocolate,  s'mores, colorful leaves. Okay, I still have to wait a month or so for that one. But, I love fall in the north.

September also brings a settling into the routine of the school year. The newness is overcome and we start to "hit our stride". This year that settledness probably isn't as settled or as comfortable with the changes brought by COVID-19 or maybe the new teacher, school, routine, online or homeschooling is hitting some snags and isn't going well. 

I think we can all agree that this year has been a doozie. September marks the 7th month of our country and lives collectively being changed by the measures taken for a virus and the future being unpredictable. Being families with special needs, we've been through that unpredictable process before, even though this is very different.

But that isn't a new state of being for us, is it? 

What do we do when our lives are in upheaval and we can't project how or when they will be better again? One of the best things I've learned to help my state of mind and emotions during times of overwhelm, unsureness (of course, that's a word!), upheaval, unpredictability, trial, etc are looking at, learning, and remembering the names of God. Many of His names are based on His characteristics - who He is. In the Bible, names were often given based on their meaning. God even changed people's names to reflect a change in their life and to match the meaning of their name to that change.

Psalm 9:10 says, "And those who know your name put their trust in you." Trust in God is something that can keep us sane, focused, and at peace during times of unrest. I don't know about you, but when I focus on me and my circumstances, I lose focus on God and my anxiousness and unrest increases.

Intentionally recalling the names of God refocuses me on Him.

If you would like a great book to learn more about the names of God, check out God's Names by Sally Michael. This is a devotional I did with my boys a few years back that continues to bless me.

Written by Sarah McGuire

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Sarah McGuire  is the Mom of two boys and co-founder of Hope Anew, a nonprofit that guides parents to Christ-centered hope and healing. You can follow Hope Anew on Facebook here. You can also check out Hope Anew’s Online Community here! 

Due to COVID-19, Hope Anew is waiving all membership fees for the community!

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Stages In The Parenting Journey Part 4

Stage 4: Momentum

The beloved house sold and the future we had dreamed of there was gone. We were out and temporarily living with Jonathan’s parents. What now? After evaluating our needs and resources: I needed a nearly new house that is mold free. We weren’t in a financial position to allow us to get that. One quarter to one third of our income was earned on the property with side businesses, so that was gone. We had very minimal household goods or furnishings, so furnishing an entire house at the same time wasn’t possible either. We also simply didn’t have a peace about buying another house right away. 

As we considered these factors we thought, what better time to get an RV (they come furnished) and go on a cross country tour!?! We don’t have many belongings to store. Our work is already remote. With no housing expenses, we could afford a new travel trailer that would be mold free and warrantied. So, the idea took shape and we dove into researching living costs, depreciation, how-to’s, socialization, how the whole camping full-time thing works, memberships, etc. We left to pick up Ruby (our travel trailer) in Mississippi the day the shut-down order for Indiana came into effect at midnight. So exciting!!!

It wasn’t all sunshine and rainbows. We hit some snags. She flooded the first night we had her as the dealership had installed a washer/dryer unit and then removed it but had forgotten to shut off the water valve. There were some things that weren’t installed right like the front door and the outdoor kitchen door that had to be adjusted and replaced or latches that didn’t catch on closets and drawers. We actually had quite a list, but it was all covered under warranty. And from our research, we knew to expect several things like that as the first owners of an RV as everything shakes down. There may have been one oopsie that wasn’t covered under warranty and that made us thankful for insurance. 

We spent hours upon hours researching, planning, dreaming new dreams, and getting set up. We used her for bedrooms, office, and school space for over four months throughout the pandemic as we have mooch docked (that’s the term for parking and plugging in at a friend or family’s property) and are looking forward to the adventure ahead and all the places she’ll bring us while having the comforts of home right with us. We did a trial trip to northern Michigan that showed us some things that are working and set up great and some that could be tweaked and made better. Already I’m healing and having more energy.

Ideally, to make the analogy between our traveling journey and the special needs journey, we would be a few months into our trip. We’d have our routines and patterns down. The learning curve would have leveled out. We would know how to navigate through all the memberships, and which are our favorite apps for each purpose needed – seriously, I think I have 5 apps for finding camping sites, 3 for navigation.

In the special needs journey, the same thing happens.

After the shock, disbelief, overwhelm, research, and initial interventions, therapist, doctors, crisis, etc. and the super steep learning curves involved in nearly every area of your child’s (and now your) life, it starts to level out. You now know what to do if X happens. You become an equipped advocate for your child. You still may not sleep well as you listen for the beep of that breathing machine, but you know exactly what to do should you hear it. You know when a therapist is absolutely NOT going to be a good match for your child before the child even meets them and avoid it by requesting they be assigned to a different therapist. You know to stock up on chocolate and tissues before the next IEP meeting. You hit your special needs parenting stride and while life isn’t easier, it is less overwhelming.

If the soul questions haven’t hit before now, they often do now. The immediate crisis and initial follow up has been handled and now there’s more emotional energy and time to stop, think, feel, and contemplate the drastic changes in your life. Even if you asked some initial “Why?” questions, they often go deeper now: “God where were you? Why did you abandon me? Us? God, why do you allow evil in the world? God, I’m so angry at you!!! Why didn’t you stop this? Why don’t you intervene? Does praying even work? Do you listen or hear at all? Are you real? Are you good? I don’t know if I believe in you anymore.” This can go into a full-blown questioning of your faith in God, who He is, if He exists, and your place in this universe.

These questions can last a few months or many years. They can lead to wrestling with all the questions and God and finding answers, tearing your faith down to its foundations and rebuilding, staying angry and bitter at God indefinitely, or to walking away from Him entirely.

It’s up to you. You may not be able to change how quickly you go through the process of settling doubts and questions, but you do choose whether you will continue to wrestle with God and your questions and doubts or if you walk away. It takes courage to ask unsettling questions and it takes strength and energy to continue to engage and wrestle. It’s messy and unpleasant. But, if you keep at it (even if it takes years) the rewards are life changing and immensely good as you’ll see glimpses of when we talk about Stage 5.

If you missed Stage 3, you can find it here.

Written by Sarah McGuire

Sarah McGuire  is the Mom of two boys and co-founder of Hope Anew, a nonprofit that guides parents to Christ-centered hope and healing. You can follow Hope Anew on Facebook here. You can also check out Hope Anew’s Online Community here!

Due to COVID-19, Hope Anew is waiving all membership fees for the community!

We’ll Get Through This

We’ll get through this.

 Those are the words I was about to type for the beginning of this post when the tornado siren blew. I grabbed my computer and phone and ran through the kitchen toward the basement apartment where our daughter and her family live.

She met me on the stairs. “Mom, tell the construction crew to come inside.”

10 minutes earlier  they’d been in the footing trenches for our house addition, building forms so the pumper truck could pour concrete. Now they were running through driving rain to their truck.

I opened the front door and flagged them down. Soon my daughter, my son-in-law, my grandkids and I were sharing the basement with 4 strangers sheltering from the storm together.

None of us had masks. We stayed as far from one another as we could, and we watched as the storm intensified. The electricity flickered and went out. A doe and fawn ran across the back pasture desperate for cover.

The construction workers called to see how their families were. My husband called from work to see how we were. “We’re okay,” I said. “We’ll get through this.”

After a half hour, the storm let up and the construction guys left. “Let’s hope no one gets COVID,” I said once they were gone. “We had to choose between possible death for them and a slight risk of sickness for us,” my daughter replied. “We made the right choice.”

We went upstairs a few minutes later and found trees down, our yard light down, electrical lines down. Miraculously not one branch had landed on our house, our camper, or our cars. The damage was a new bead to add to the string of challenges weathered by our family over the years.

My mom’s family survived the Great Depression by shooting pigeons and raising vegetables. She was in high school during World War 2.

My parents weren’t even 30 when Dad was diagnosed with multiple sclerosis. Mom furthered her education while teaching school, raising 3 kids, and caring for Dad.

My husband and I cared for our medically-fragile baby while living 70 miles from a hospital. That baby lived with PTSD for 26 years before it was diagnosed and treated.

Floods, blizzards, ice storms and more in our 43 years of marriage.

Now this unusually ferocious and widespread rain, wind, lightening, and thunderstorm. In the middle of a pandemic. While building an addition onto our house.

Our family, like yours, has an ever-growing string of challenges. I, perhaps unlike you, have doubted God’s goodness during the worst bits of them. But in every case, once the bead is knotted in place, I look back and recognize the same two life-giving truths.

God was present with us from beginning to end. And our faith is the stronger for it.

This morning, still without electricity, my husband headed outside to cut up branches and haul them away. On his way out the door, he smiled and said, “We’ll get through this.”

With all my heart, I want you to know that what my husband said is true. Whatever your hardship or challenge is today, be very sure that you will too.

Nevertheless, the righteous shall hold to his way,

And he who has clean hands shall grow stronger and stronger.

Job 17:9

Jolene Philo is the author of the Different Dream series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She recently co-authored Sharing Love Abundantly in Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities with Dr. Gary Chapman. Her blog for parents raising children with special needs and disabilities can be found at www.DifferentDream.com.

Stages In The Parenting Journey Part 1

In 11 days from when I’m writing this, our family is scheduled to launch out on an epic adventure. A 9 to 10 month cross-country RV trip. We are getting final details in place – paperless billing, homeschool supplies set, wardrobes minimized, sizes updated (growing boys – sheesh, all the fall clothes are too small), and so much more.

As I reflect on how this epic adventure came about, I see a great similarity in this actual trip and the process parents of kids with special needs go through in their journey. There are stages in both journeys and they parallel.

I’ve been asked repeatedly if this was something we’ve always wanted to do, planned to do, saved money to do. Uhhh, no. Personally, I always thought it would be amazing and cool, but thought it would never be possible for us because of the expense and upkeep of having a house while also getting an RV and leaving for months on end. And then…

Stage 1 – Shattered Hopes.

We learned our house had mold. Our dream house. The prettiest two acres you’ve ever seen bordered by pine trees giving it privacy, a lovely pond that gives my child, who is allergic to chlorine, a place to swim to his heart’s content, grandma and grandpa next door to love on my boys and for my boys to help them with projects, the most efficiently designed 4 bedroom house with large rooms and double closets I’ve ever laid on eyes with a dream kitchen and custom cabinets, a lovely workshop out back for Jonathan. Organic fruit trees, berries, and my favorite flowers dotted throughout the property. And oh the gorgeous welcome of the tree-lined drive that flowers deep pink in spring. But, I have been struggling with health issues for several years and no doctors were able to figure out what was wrong or how to help me feel better. Through a process of elimination and investigation we learned…mold. In our home and in our church, which doubles as our homeschool co-op building. The two places I spent nearly all of my time. I had become so incredibly sensitive to mold that in order to heal, even after fixing moisture issues and remediating, we knew we’d have to move. No more dream home and property, no more homeschool co-op, no more involvement with our church family at the church building. Crushed plans. Shattered hopes. Loss.

Does that sound familiar to your special needs journey?

When you were pregnant, so many hopes and dreams and plans for who your child might grow up to be. A sweet little girl with silky brown curls and a love of… maybe horses? Maybe rainbows? Maybe a math whiz? Or a bookworm? Who grows to be a teacher, doctor, accountant? Dad walking her down the aisle in her dream wedding dress. A delightful little boy with freckles who scares his sister with surprise frogs, plays fetch with the dog, collects rocks, and delights in watching the garbage truck on Tuesdays. A track runner? A football linebacker? A robotics champion? The possibilities fill your head with dreams and possibilities…but then a vacant stare, not responding to his name,  her ultrasound shows an abnormality, a seizure, lost words, flapping hands, a NICU stay – for months, surgeries. A diagnosis.

Life as you dreamed, hoped and planned will never be the same, will never happen. Life will be forever altered. You are crushed. Your dreams are shattered. Your heart is broken. What was will never be again. And what is ahead, you do not know other than that it will be hard.

At this point, you may jump right into action mode, might bury your head in denial (that may be okay, temporarily, it is part of the grief process after all), might get angry – at God, doctors, your spouse, yourself, or just life in general. You and your spouse may react in opposite ways. It’s not uncommon for the wife to jump straight into research while the husband defaults into denial and anger.

Just as we didn’t stay in the stage of Shattered Hopes when we found out that we had to move out of our dream home and leave our church family, this stage is not the end-all be-all in our journey as parents of children impacted by disabilities and special needs. In the upcoming weeks, I will continue to share how our rv adventure compares to our special needs journey and look more closely at the stages that many of us go through.

Written by Sarah McGuire

Sarah McGuire  is the Mom of two boys and co-founder of Hope Anew, a nonprofit that guides parents to Christ-centered hope and healing. You can follow Hope Anew on Facebook here. You can also check out Hope Anew’s Online Community here!

Due to COVID-19, Hope Anew is waiving all membership fees for the community!

To My First Born Son On His 18th Birthday

18 years.

18 years filled with laughter and love and sometimes heartache and tears. 18 years of watching every milestone and “checking it off” – feeling like we accomplished something. 18 years of watching some milestones pass by and realizing we still haven’t met them and dealing with the grief that these are the milestones that you may never meet.

But as I write, I realize you have risen above my expectations I had for you and I know you will continue to. It’s because even though there are many things we may have ahead to learn there are things you have taught me and others.

…you have taught me God’s sovereignty. From the moment I held you I knew He had a plan for your life. When we found out about the Down Syndrome, I didn’t understand why God had chosen this path for you or me. As the dust settled and the tears dried there was one passage I clung to. The passage is in John 9 when Jesus heals a blind man. Although I knew that “healing” was not the answer for a genetic condition. This scripture helped me find an answer for why God chose this path. Jesus’ answer is in verse 3. Jesus’ followers were baffled. Why was this boy born blind? Obviously someone sinned . But Jesus responds “he was born blind so that he could be used to show what great things God can do.” Now 18 years later I am able to see so many of these great things. I have learned it’s not my fault or that I’m being punished . These verses remind me that your disability is anything but that. The plan God had all along for you is a gift so that you can display the works of God through your life and your unprejudiced mind and heart.

… you have taught me patience. Every step of this journey together has been slow, every milestone, every word, every year of school, every IEP – a lesson in learning to be patient in God’s timing. While I’ve spent days, months and years waiting for each step, It causes me to think how patient God is with me. So many times it takes me so long to learn things that I’m sure God feels like he has tried to teach a million times over. You are my visible reminder that God brings beautiful blessings in His time if we just wait.

…you have taught me to laugh. You are silly. Always trying to make me laugh. And always laughing. You can make anyone laugh and you know how to laugh at yourself. And when I start to take life too seriously you are there to help remind me that life is too short not to laugh a little.

…you have taught me to see things through different eyes. To catch a glimpse of what really matters most. Not the little events of life but the way these events affect our soul and others. Your concern when others are sick, or sad. The way you never want to make anyone mad. The way you put others first. I often wonder what the world would be like if we all saw others through your eyes.

…you have taught me unconditional love. You give and accept love from others with no conditions. You share love so easily and I’ve seen you hurt because of the way you love someone or something so hard. Your heart is so big and filled with so much love for the people you know. You have taught me that loving is not about what we want others to be but about loving them as they are. It’s about loving me when I have a short temper or snap at you. It’s loving like Christ … not because of anything I could do but loving because that’s what you are.

I’m reminded of the old hymn, “Come Thou Fount,” it speaks in the second stanza of raising an Ebenezer. Strange language isn’t it? The prophet Samuel set up a stone after the LORD helped Israel win a great victory. This was not without repentance and seeking the LORD on Israel’s part. They had to put away their false gods and pray. The stone, named Ebenezer, commemorated that victory, for “Thus far the LORD has helped us” Whenever the Israelites would pass by the stone, they would remember what they were capable of, and how the LORD acted on their behalf.

So you my son are my true Ebenezer. You are the physical reminder of God’s faithfulness and goodness. In 18 years you have taught me all these lessons and more. You remind me daily what the Lord is capable of doing. And you show me daily that God has and is still continuing to teach me more about Himself through you.

So HAPPY 18TH BIRTHDAY Bub. You are so loved!

Written by Leigh Ann Kaman

Leigh Ann Kaman is a wife and mom to three kids, one of which has Down Syndrome. She advocates in the special needs community and has started a ministry in her church for those touched by special needs. She is also actively involved in Capernaum, a ministry of Young Life for young adults with disabilities. Writing about her life as a special needs parent has always been her passion. 

Summer To Remember

It’s July! This means the start of a new month and a new theme in our online community! What memories, thoughts, scents, events, and feelings does July inspire for you? 

For me, it's the feel of sunshine on my skin. Thoughts of parades, fireworks, family gatherings, bike riding, picnics, sandy beaches (I grew up close to Lake Michigan), weeding the garden, the sound of corn growing, the feel of garden dirt and yard grass between my toes, playing in the sprinkler, the tastes of sweet corn dripping with butter and watermelon. 

As I think of this, I realize these are mostly all from when I was a kid.

Since I've become an adult, I have rarely taken the time to slow down enough to soak in the sensations, scents and joy of summer. Summer was my favorite season as a kid. While I now also love spring and fall, I still love summer. My birthday is also in July, so that's just a cherry on top of the already delicious treat of summer! 

As I reflect on these memories, I want to enjoy them again and create them for my kids. Not only will this create amazing memories for them, there are other benefits too! Like strengthening our family and relieving stress, and who of us doesn't need a little - or a lot - of stress relief! 

So, our theme this month is (drumroll)... Summer To Remember!!!

And we mean this in a positive way, not because of the pandemic, lol. We can create times of amazing memories with our family regardless of the pandemic. Activities can be simple and cheap or free, simply by intentionally selecting some activities to do together this summer and checking them off as you go can help make your summer a Summer To Remember!

We have a cute, free download graphic chart for you to print and fill in with your family. Get suggestions from your kids and significant other and write them down. Plan to incorporate them throughout the next month or two and check them off as you go. If you are challenged coming up with ideas, we've got you covered. We are also offering a free download of 101 ideas for you to use as-is or to help jump start your own ideas.

Don't make it overcomplicated or something you have to put a lot of energy or $ into and let that stop you. Did you notice the things I remember about summer from my childhood? Grass and dirt between my toes - how often do we walk outside barefoot now? Soaking up the sunshine. Cloud shapes. Watermelon. Playing in a sprinkler. Stargazing.

These are your action steps:

1. Print the chart and 100 ideas list. 

2. Choose ideas from the list or brainstorm your own.

3. Fill in your family's chart. 

4. Begin making it a Summer To Remember!

5. Share your adventures with us in the community! We can't wait to see all the memories you're making with your family.

Join us in the Hope Anew Online Community to get the free downloads. Go to members.HopeAnew.com and join for free!

Written by Sarah McGuire

Sarah McGuire  is the Mom of two boys and co-founder of Hope Anew, a nonprofit that guides parents to Christ-centered hope and healing. You can follow Hope Anew on Facebook here. You can also check out Hope Anew’s Online Community here!

 Due to COVID-19, Hope Anew is waiving all membership fees for the community!

Count Your Blessings: A Way To Stay Sane in a Crisis

Count your blessings, name them one by one,

Count your blessings, see what God has done!

When I was much younger, I rolled my eyes every time we sang this hymn at church. To my mind, the lyrics touted a solution far too simplistic for the troubles our family faced.

Even when I did as instructed, life didn’t get better.

 My dad was sick and getting sicker. My mom shouldered too much stress as she worked to feed and clothe us. The trend continued after the birth of our son. Five years and seven surgeries into his young life, life was hard and getting harder.

 So far as the count your blessings thing went, I told God to count me out.

 Then, one day the beginning of Zechariah 4:10 caught my eye: “For who has despised the day of small things?” (NASB)

Hmmmmm. 

If my response to the lyrics of Count Your Blessings was any indication, I had been despising the day of small things for years. Maybe even decades. 

Not good. Not good at all. 

An attitude change was long overdue, and it was a hard change to make. But as I began to look for small blessings, it was easier to see and delight in them. 

And then, along came COVID-19.

 The temptation was strong to stop searching for small and good things while living through such a vast pandemic. But for my own mental and spiritual health, I kept looking for and found these 10 tiny and precious treasures.

1. The ability to walk. My dad’s 38 years in a wheelchair make me grateful for mobility every day.

2. Favorite notebooks and mechanical pencils. I don’t know why speckled composition books, yellow legal pads, architectural mechanical pencils bring great joy, but they do.

3.  Ordering online. It’s fast. (At least the ordering part is fast.) It’s easy. And it’s much safer for old coots like me who want to stay healthy until the risk of catching COVID-19 go down. 

4. Our espresso machine. Several members of our household love good coffee, so we splurged on it last summer. The coronavirus shut down feels less confining with delicious espresso at hand.

5. It’s spring. More daylight and warmer temperatures bring me joy and hope.

6. Bird song. Another daily source of joy and hope.

7. Intergenerational living. We live in the same house with our daughter, son-in-law, and their two children. This intentional living arrangement began 4 years ago, and it takes work to keep things going smoothly. To us, it’s worth it. Doubly so during the shut down. Our daughter trimmed my hair a few weeks back. Our son-in-law does the grocery shopping. And water, sewer, garbage, and energy bills are split between families. Win! Win! Win!

8. Eavesdropping on a 5-year-old at play. This could have been lumped in with #7, but listening in on a child’s make believe world is so dear, it deserves its own spot.

9. Happy birthday to me. Our 2-year-old granddaughter sings this when she washes her hands. It’s too much cuteness to lump in with #7.

10.  FaceTime. We use it to connect with our other 2 grands and with my 91-year-old mom who’s in a residential care facility. Because of #7, all our grands can visit at the same time, and Mom gets to see her great-grands. More wins!

Caregiving or COVID-19 can make it hard to count your blessings, and I get that. But I encourage you to look for them, no matter how small. They have the power to keep you sane in a crisis.

Because little things matter.

Tiny things count.

Small things add up.

And you are worth it.

Jolene Philo is the author of the Different Dream series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She recently co-authored Sharing Love Abundantly in Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities with Dr. Gary Chapman. Her blog for parents raising children with special needs and disabilities can be found at www.DifferentDream.com.

Overcoming Parental Burnout

Help! I’m on the road to parenting burnout and don’t know what to do!

 This is a hard place to be. When we struggle with burnout at work, we can look for another job if needed. When we find ourselves here as parents, it can feel hopeless at times. We can’t just say,  “I’m done being a mom or a dad”. Although my wife has tried that but after a couple hours she’s ready to jump back in.

As parents whose children have additional needs, the recommendations you are about to read will seem difficult and if you are a single parent, they will seem impossible.

So what do we do when we recognize we are showing signs of burnout?

1. Talk to someone and ask for help!

If you are married, let your spouse know where you are at emotionally and ask if they can help with a specific task.  “I am completely overwhelmed and could use extra help for a while. Can you watch the kids for a couple hours while I get groceries?” (You might want to allow extra time to drink a cup of coffee at the local coffee shop and bring one back for your helper. 😁)

If you are a single parent, this is really hard. Do you have a friend that you trust that you can both share where you are at and that you can ask for help from?

It is oddly hard for us to ask for help. There are a lot of reasons for this. We may be thinking that we don’t want to add extra burden on someone else or one of many other excuses.

Here are three things to keep in mind when asking for help:

• Be specific. It is hard for someone to agree to help when they don’t know what they are agreeing to.

• Be flexible. If a person is only available to help during a certain time, what can you reschedule to try to make that time work?

• Let go of perfection. Realize that things may not be done perfectly or the way you would do it. If it is not something that threatens the health of your child, then let it go.

2. Prioritize sleep.

You likely know this is a need already. Our bodies need sleep. This may mean taking a nap as a family. You may need to ask a spouse, friend, someone from church or a babysitter to watch the kids while you take a nap. This may mean that the stack of dishes doesn’t get washed or put away or that load of laundry doesn’t get folded.

3.     See a counselor.

Many churches have an agreement with local counselors and will pay for you to see the therapist. There was a period in our journey when Sarah went to see a therapist that our church provided. The main motivating factor for her was so she could have an hour break.

4.     Establish a routine and minimize multitasking. 

I’ve heard multiple parents express that they are experiencing decision fatigue. Routine will help with this. Establish a two week menu plan so you don’t have to think about what you are going to eat every day and so you can use the same grocery list each time. Determine which outfit you will wear each day of the week and stick with it so you don’t have to think about it every morning. One mom we know wears a t-shirt every Monday that says, “This is my Monday uniform.”

We often feel pressured to multitask. In some cases, I feel like this is especially true for women. The truth about multi-tasking is that it can decrease our productivity by up to 40% and we typically feel more stressed as a result. It is not completely unavoidable, but how can you set boundaries to minimize the amount of multitasking you do in a day. 

5.     Take a break.

It is important to take a break, even if it is only 5 minutes.  Let’s be real though. Sometimes we need a longer break.

Here are some ideas to help with that:

• Talk with your pastor and see if there is grand parent or nurse that would volunteer to  come watch the kids. You don’t even have to go anywhere. You could take a nap!

• Check with area churches and see if any of them provide a respite night for parents of children impacted by disabilities and special needs.

• If you don’t see a church that does this, check out 99 Balloons or Nathaniel’s Hope and see if they come alongside families in your area.

6.     Take care of your body.  

This is often the last thing that we want to do. It adds extra stress when we think about it and seems like more work.

What we put into our bodies can help or hinder our recovery from burnout. Nutrient dense foods provide us with the fuel we need to recover. Our eating habits do impact our overall health, energy levels and how we feel about ourselves.  I’m not saying that we need to always eat organic freshly prepared meals. Sometimes self-care means throwing that frozen pizza in the oven and having a bag of chips.

Related to this is being physically active. Aside from the physical benefits, being active can boost energy and increase those feel good hormones. This doesn’t have to be going to the gym for an hour each day. It can be  as simple as going on a walk with your dog, playing outside with your kids,  or taking time to stretch your body.

7.     Laugh.  

When we are stressed, it can be difficult to find things to smile about and laugh about. Laughter is refreshing and lightens the mood of the entire house. Save a folder on your computer with links to funny videos, jokes, etc. Take a 5 minute laugh break every day and this will help so much with your stress levels. Even fake or forced laughing has been shown to be beneficial. In fact, here is a funny video to help get you started.

Change and recovering our health happen incrementally. Don’t feel like you have to do everything on this list this week, but what is one thing you can do?

Written by Jonathan McGuire

Jonathan McGuire  is  the father of two sons and the co-founder of Hope Anew, a nonprofit that comes alongside the parents of children impacted by disability on a spiritual and emotional level. You can follow Hope Anew on Facebook here.

Hope Anew has launched the Hope Anew Online Community and would love to have you be a part of it! You can learn more at www.HopeAnew.com.  Due to COVID-19, Hope Anew is waiving all membership fees for the community!

Stages of Parent Burnout

So did you take a break last week and ask yourself if you recognize the signs of burnout in your life? Some of you just thought, “I didn’t need to pause to know I’m burnt out.” Others of you are thinking, “I’m good. In fact, I think I will make cupcakes for our therapists when I can get out of the house.”

Did you know that you don’t just wake up suddenly not wanting to be a parent or not wanting to get out of bed. Burnout happens gradually.

How many of the following points resonate with you?

• Having a child with physical or mental health challenges

• Perfectionism: feeling you need to be the “perfect” parent at all times

• Lack of support from spouse

• Both parents working outside the home

• Financial concerns

• Not enough support from outside the family (childcare, extended family, etc.)

• Finding it hard to ask for help

• Over-scheduled kids

Many of us can look at that list and can easily circle between a third to half of the points and even come up with additional points. As the stressors increase, we become more at risk for burnout. This burnout can range from mild to severe.

In her podcast episode on Parental Burnout, Krista Maltais describes the severity of burnout as follows.

Mild Burnout: Mild burnout can start with some situation that is outside your normal that causes extra stress. This can be something as basic as caring for a child or spouse that is temporarily sick. These symptoms may include, short temper and/or limited tolerance, foggy-brain, heightened sensitivity to their emotions and environment, and is usually accompanied by disruptions in sleep patterns.

Moderate Burnout: A parent who is experiencing moderate burnout, perhaps due to prolonged sleep deprivation or other stressors (such as finances, lack of childcare, limited opportunities for self care, etc) may begin to experience additional physical symptoms such as headaches, confusion, forgetfulness, upset stomach, anxiety/depression, feelings of isolation and/or overwhelm. As burnout sets in, communication with others also tends to break down which can lead to an increase in conflict, misunderstandings, etc, especially with the partner.

Severe Burnout: A parent with severe burn out due to long-term exhaustion, stress, lack of physical/emotional/logistical support, and/or physical/mental health complications, may exhibit the above-mentioned signs as well as hormonal imbalance which can further cause a loss of sex-drive, insomnia or dis-regulated sleep patterns, and additional health problems. Burnout symptoms may also present as obsessive compulsive tendencies or a multitude of uncompleted/avoided tasks due to overwhelm.

The first step in overcoming burnout and preventing burnout is the same. You have to recognize the stressors in your life. 

Next week we will look at steps to preventing and overcoming burnout. In the meantime, if you haven’t done it yet, download our free “5 Minute Vacations” guide and check out our friends at Run Hard Rest Well. That will get you started in the right direction.

If you find yourself in this severe state of burnout and are having suicidal thoughts, please seek immediate professional help. The number for the suicide hotline is: 1-800-273-8255.

“I have told you these things, so that in me you may have peace. In this world you will have trouble. But take heart! I have overcome the world.” ~John 16:33 (NIV)

Written by Jonathan McGuire

Jonathan McGuire  is  the father of two sons and the co-founder of Hope Anew, a nonprofit that comes alongside the parents of children impacted by disability on a spiritual and emotional level. You can follow Hope Anew on Facebook here.

 

Hope Anew has launched the Hope Anew Online Community and would love to have you be a part of it! You can learn more at www.HopeAnew.com.  Due to COVID-19, Hope Anew is waiving all membership fees for the community!

Parenting Burnout

It is week number whatever since COVID-19 began and I am making good progress on my coffee stash.  The cutesy Facebook posts highlighting everyone’s Pinterest projects are starting to fade. The smiles are starting to look more strained  as parents are wondering how much longer they will have to be the counselors/craft room directors at “Camp Corona.”

When asked how they are doing, I have heard multiple parents sheepishly reply that they “need a break from their kids.”  

There is a feeling of always being “on” and no end in sight. Parents are helping their kids navigate emotions, trying to come up with activities, and teaching school. They may have less help and support to care for their children impacted by disability. They are helping their children work through interpersonal conflict with each other and trying to come up with out of the box ways for their children to have social interaction. This is all while trying to figure out the rest of life. You know the little things like jobs, bills, taxes, food, and toilet paper.

I’m going to make a comparison that you may find to be controversial and may make you uncomfortable but if we were looking at someone who had these types of stressors at their regular place of employment, we would say that they were at risk of “burnout.”

You may be thinking to yourself, “but parents aren’t allowed to burnout.”

 If you Google burnout, you will get the following definition:

“Burnout is a state of emotional, physical, and mental exhaustion caused by excessive and prolonged stress. It occurs when you feel overwhelmed, emotionally drained, and unable to meet constant demands.”

Does this sound familiar? In all reality, due to the nature of this journey in special needs and disabilities, you have likely found yourself in this position prior to COVID-19.

In those times where you find yourself fantasizing about a half day where you don’t have to be a parent, a spouse and a care giver, you likely have recoiled and buried the emotion. We feel guilty because we fear it means that we love our families less and are fearful of sharing this emotion with others because we are afraid of what they may think.

I want to encourage you. This feeling doesn’t mean that you love your family less but it is a feeling we should take seriously when we experience it. It serves as a warning.

I recently heard the analogy that batteries only have so much energy that they can expend before they are completely depleted. This is true of us as well.  We know that if we want to use our cell phones tomorrow, we can’t just use them non-stop and not charge them.  Similarly, we need to charge our own batteries. This is done through self-care.

So how are you doing? Do you recognize the signs of burnout in your life? If so, what is one thing you can do today to begin recharging your battery?

If you need ideas for self-care, feel free to download our pdf on “5 Minute Vacations” or watch the video here. We will also be talking about this more in upcoming posts.

Written by Jonathan McGuire

Jonathan McGuire  is  the father of two sons and the co-founder of Hope Anew, a nonprofit that comes alongside the parents of children impacted by disability on a spiritual and emotional level. You can follow Hope Anew on Facebook here.

Hope Anew has launched the Hope Anew Online Community and would love to have you be a part of it! You can learn more at www.HopeAnew.com.

Due to COVID-19, Hope Anew is waiving all membership fees for the community!

Why Am I Struggling So Much?

Do you ever wake up and not want to get up? Do you ever lose your motivation and drive? Stay awake at night too late just vegging or zoning out? Snap at your spouse and everyone around you? We go about our day to day lives, caring for our kids, spouses, and selves handling what needs to be handled, doing the tasks that need to be done, mediating the scuffles that arise, and a host of other things. You used to have motivation to do all the things, to tackle the challenges, to meet the needs, to love others well in a peaceful way. Now you feel sad, angry, grumpy, tense, or unmotivated.

So, what is going on? What has changed? Why are you struggling?

 As a parent of a child with special needs and disabilities, you aren’t alone. The more parents I talk with the more I see this as a common, almost universal struggle. It may not be all the time, and it can be more pronounced in certain seasons of life and circumstances. And, I’m seeing it strongly right now in the general population with the Coronavirus stay-at-home order. Why?

One of the main reasons is grief. Grief is not only experienced when there is death, but with any type of momentous loss. This includes the loss of what was expected or anticipated in the future but will now not happen. This might be the hopes and dreams you had for your child and for how your family would look, activities they would do together, social interaction with family friends. But, the child will never accomplish those things, the family can’t do those activities, and the friends deserted you when you had a child with special needs. It might be a vacation you had planned or a graduation ceremony and senior year events with friends that won’t take place. It could be a lost job or every bit of “extra” income going to pay for therapies and treatment instead of a night at the movies or a vacation.

Grief has five stages: denial, anger, bargaining, depression, and acceptance.

These stages aren’t linear, so just because you dealt with anger yesterday that doesn’t mean you’re done with it for good. No, you can go through the stages repeatedly and can bounce back and forth between different stages. You may stay in one stage for a while or you may experience all of them in one day. A participant in one of our group Hope & Healing Workshops once commented that they felt like they were in the tumble dry cycle of a clothes dryer and that can sum it up perfectly.

 What do you do about it?

1. Acknowledge it. Name it. Simply identifying it and naming it can help so much.

2. Express it. That will look differently for different people and personality types. It may be writing in a journal, talking with a friend, having a good cry, writing a lament, expressing it to God, etc.

3. Shelve it. While this isn’t a good long-term plan, it is sometimes necessary in the short-term. Sometimes in order to deal with what needs to be done right now in this moment, hour or day, we can’t take the time to deal with it because it would stop us from handling the current situation. But, still name it, “Oh, that’s grief. I’ll need to deal with and express this later for my emotional, mental, physical, and spiritual health, but I need to set it aside for now so that I can complete _____ task.”

4. Express it some more. Grief comes in waves and just because you acknowledged it and expressed it once doesn’t mean the process of grieving is complete. It will usually take repeated expressions of it before you are ready to move on, especially with more significant losses.

5. Don’t let yourself get stuck there. If you only ever focus on the loss, you won’t be able to move into the future and build new dreams. This doesn’t mean you deny the reality of what you lost, but it does mean you say something like, “Yes, I lost ____ and that is significant, hurts terribly, and I will continue to grieve it sometimes. Yet, I have ______ and while it will be different than what I wanted, expected, and hoped for, life can still be beautiful, good, and purposeful.”

Written by Sarah McGuire

Sarah McGuire  is the Mom of two boys and co-founder of Hope Anew, a nonprofit that guides parents to Christ-centered hope and healing. You can follow Hope Anew on Facebook here. You can also check out Hope Anew’s Online Community here!

Due to COVID-19, all membership fees to the Hope Anew Online Community have been waived!

A Better Way

Here in Illinois we are in week 4 of the Coronavirus lockdown and our house is rapidly edging toward stir crazy. I am used to working from home. Pretty much no one else here is. My wife is a raging extravert and my daughter, a sophomore in high school, desperately wants to see her friends. Our oldest can’t go to work because it is shut down. Even my autistic son Nathan, who is in a transition program he doesn’t really like, wants to go back to school. Online school simply isn’t the same. His mom has been his paraprofessional and she is tough.

For most of us, the coronavirus pandemic is inconvenient, but for others, it really is causing suffering: people are dying from this disease, businesses are failing because they cannot operate. There is going to be fallout for some time to come. Just like our series looking at the causes of suffering related to our special needs children, many of us are asking why this pandemic is happening. Is it our fault? Is it God’s fault or the devil’s fault? Is there no fault at all? What are we to do about this?

As we have seen, these questions often lead to answers that come up short. The Bible simply doesn’t offer us a catalog of reasons for suffering. Sometimes we will suffer for following God, but that is clearly not the only kind of suffering we see in Scripture. Sometimes the reason is hidden. Sometimes we don’t get a reason. So what are we to do? How do we face another day, another meltdown, another shattered dream?

We look to God.

I know, I know, that sounds trite. A “Jesus Juke”. Something the person who has never had a problem says. I get it. I am tempted to respond that way, but beyond the cliché there is something real. When I say “look to God”, I mean it. Look to God’s character. When we do this, something very important comes to light.

Throughout the Old Testament, God is patient with his people. Old School King James: “long-suffering”. Over and over again God’s people fail. Adam and Eve, Cain, Abraham (often the same failures repeatedly), Jacob, Moses, the entire book of Judges, Saul, David, Solomon . . . you get the picture. God never abandons his people. He never walks away. They provoke his anger, yet he is patient. When his people repent, he is always there for them. He may have seemed far away, silent, but he is always closer than they think. Perhaps the most dramatic picture is the book of Hosea – a man who is repeatedly betrayed by his wife, who suffers greatly because of it, but who sees restoration and healing. Hosea is a picture of God and his wife Gomer is Israel. God understands suffering and is in his very nature long-suffering. But this is not the end of the story.

 In Jesus we see something more. Not only does God suffer because of his people, in Jesus he suffers with his people. Paul, in Philippians 2:5-11 reminds us that Jesus was God who chose to become a slave, a human and to die a violent death on our behalf. God suffers with his creation. God suffers for his creation. 

When we ask “why?!”, we mostly want to know that this suffering matters, that someone cares. Jesus shows us that God does care, that he is paying attention even if we do not see it. This changes everything. When we realize that God suffers on behalf of his rebellious children, the very children who broke his beautiful creation, when we see that he has taken the job of repairing the breach on himself, we can be encouraged to face the next day, the next challenge, the next . . .

We do not always see or understand how or where God is at work. We know, we have seen, that he is trustworthy. Jesus reminds us that God sees even the sparrow fall and that we are worth far more than a sparrow (Matt. 10:29-31). 

“Why?” is an important question, a question that does not, I believe, offend God in the slightest. It is a question we ought to ask. But we can’t live there. In Jesus God shows us that we don’t have to. In Jesus God holds out his hand to us and says

Come to me, all you who are weary and burdened, and I will give you rest. Take my yoke upon you and learn from me, for I am gentle and humble in heart, and you will find rest for your souls. For my yoke is easy and my burden is light. (Matt. 11:28-30)

Written by Kevin O’Brien

Kevin O’Brien is a husband, father, ordained minister, writer and volunteer theologian. He holds a Master of Divinity and Master of Theology from Liberty Baptist Theological Seminary where he won the Th.M. award in 1997. He has also done graduate work at the Institute for Christian Studies in Toronto.  Kevin worked as a brand manager on the Bible team at Tyndale House Publishers. During his time at Tyndale he has helped to develop several Bibles and has written articles which have appeared in The Way, the iShine Bible, and the Illustrated Study Bible. He also wrote a series of devotionals for WAYFM’s World’s Biggest Small Group.

Most recently, Kevin wrote an Advent devotional eBook. You can find it here. 

Kevin lives in the far western suburbs of Chicago with his wife, three children, a dog, and a cat. He would prefer to spend his time reading, writing, woodworking and watching the Chicago Blackhawks.

Seasons of Doubt

Hi Friends, it's April! I can't wait to see flowers start to bloom and trees start to bud after this winter season. Living in northern Indiana, we get to experience all four seasons very distinctly.

The theme in the Hope Anew Online Community this month is Questions, especially regarding God, Scriptures, and faith. This journey in disability and special needs has a way of making us question and rethink our worldview and priorities. Sometimes, whether we want to question them or not. We want to encourage you that if you are going through a time of unrest in your view of life and God, the Hope Anew Online Community is a safe place to voice those doubts, ask those questions, and work through that process. 

God is incredibly patient and understanding with us. He invites us to come to Him with our cares, fears, doubts, disappointments, misunderstandings, anger, and grief. He offers salvation because He knows we are a mess. He doesn't expect us to come to Him polished and perfect. He holds His arms wide in welcome, loving us as we are, and holds our hand as we take the next step in becoming more like Him. 

If you are currently in a time of questioning God, feeling abandoned and disillusioned by Him, keep asking, keep seeking, keep bringing those doubts, fears, anger, and grief to Him. Just as winter in Indiana can seem like it will never end, time and history show us that it will. Spring will come, flowers will bloom in their own right time if we wait for it.

If you keep pressing into God, asking questions, seeking HIM for who He is, He will meet your need for Him. His answer may not be what you were expecting or desiring, but it will be a good answer because that is His character. He is a good Father. He sees you and has promised never to abandon His children. 

All fees related to the community have been waived, so you can now join for free. I’m loving having a supportive, encouraging community of parents who “get it” and would love to have you join us!

Sarah McGuire  is the Mom of two boys and co-founder of Hope Anew, a nonprofit that guides parents to Christ-centered hope and healing. You can follow Hope Anew on Facebook here. You can also check out Hope Anew’s Online Community here!

Embracing God’s Love for Special Needs Parents

This special needs parenting journey is challenging. Sometimes it feels like we’re drowning in appointments and anxiety, and other times it all seems manageable, but either way, something will happen to throw a monkey-wrench in everything. Something hard, as if we weren’t experiencing enough hard as it is. A rough day. Another diagnosis. A financial hardship. A sickness or hospitalization. Or our current situation of the spread of coronavirus and our social distancing and losing the village that we relied on--our churches, schools, children’s therapists and specialists, etc. It is easy in times like that to feel overwhelmed and to ask God a plethora of questions.

A few years ago, I was having an exceptionally hard day and I felt myself getting angry at God. “Why God? Why is everything so hard? Where are you? You’re supposed to be a good God and I don’t see you doing any good in this situation.”

I raged silently at a God who felt just as silent.

I knew I desperately needed some time to be alone with God, but my boys needed dinner and attention. And then, bedtime rolled around.

After my older son, about four or five years old at the time, was all snuggled in bed and we had read his book before bed, we prayed together. Sometimes I did the praying, sometimes we did prayers fill in the blank style as he could only say one or two-word phrases. I would say “thank you God for ____” and then he’d respond with something he was grateful for. Usually it was Mama or Dada or Baby (his little brother) or Birds (what he called his ipad because he loved to play Angry Birds on it) and so I decided to go with the fill-in-the-blank style prayer.

Me: “Thank you God for ____.”

“Eesus!” he said with a grin.

I choked back tears as I told him, “Yes, thank you God for Jesus.” I’ve never had any indication that he understood anything relating to God, Jesus or Bible stories, except for identifying “baby Eesus” at Christmas time. I’ve never prayed before using the words “Thank you God for Jesus.” It was his own spontaneous thought and it filled my heart with hope and joy.

We finished our prayers and I kissed that precious little guy goodnight and as I left his room it hit me: God had answered my angry prayers through the mouth of a child who would need years of speech therapy to be able to talk like his peers. I had demanded God tell me where He was and why it felt like He wasn’t caring for us. And He gently reminded me that He loved me and my children so much, He gave us Jesus.

“For God so loved the world that he gave his one and only Son, that whoever believes in him shall not perish but have eternal life.” John 3:16 NIV

Oh, how amazing, how incredible is that?

The more I thought about God giving us Jesus, I realized that the Creator of our universe can relate to our special needs parenting journey in three unique ways that can encourage us:

God treasured His child, even before His child did a single thing.

“After his baptism, Jesus came up out of the water and the heavens were opened and he saw the Spirit of God descending like a dove and settling on him. And a voice from heaven said, This is my dearly loved Son, who brings me great joy.” (Matthew 3:16-17 NLT).

Jesus hadn’t yet done a single miracle or shared a parable and yet God was proud of Him. He called Jesus His beloved Son. He found great joy in Him.

And as parents, we do the same thing. We love them the moment we first meet them, and even though they need us to do everything for them, even though they cannot do a single thing for us in return, we love them. No matter how much care they need in their lifetime, we will still love and treasure and advocate for our child. They don’t have to do anything to earn our love, we just love them with all of our beings and are willing to do anything to help and protect our children.

God watched His child be rejected, struggle, and suffer.

God knows what it’s like to see your child suffer and struggle. He watched people not understand His son, watched them mock and test His son. He witnessed His child get beaten and whipped, carry a heavy wooden cross, and then have nails hammered through His wrists and ankles pinning Him to that cross. His son suffered for hours, and I’m sure God longed to take His son off of that cross, to hold Him tight in His arms, and take His son far away from the cross. Oh, yes thank you God for Jesus!

He knows how much we love our children, and the greatest thing of all is that He loves our children even more than we do.

He joins in our heartbreak when we watch our children experience pain or go through medical procedures. He grieves with us when we watch our children struggle to do things that come so effortlessly to other children. He understands our longing to change the circumstances for our children. He understands our pain when we see our children not be understood by others or mocked and excluded by others. 

God had a greater plan, and it was for our good.

But God had a plan. He knew there was a glorious purpose in His dearly beloved son’s struggles and suffering. I’m sure that didn’t make the pain and helplessness go away as His child hung on a cross. His love for His son was as fierce as ever, but His love for you and me and for our children and all of humanity was steadfast and unwavering. Yes, thank you God for Jesus!

Sometimes we have a plan for our children they cannot see. They cannot see the purpose in a medical test or a procedure or the therapies they go to, but we know the purpose for it. They don’t always see us advocating for them with schools and insurance companies and our churches, but we advocate because we have a plan and goals in mind to help our children be included and get the supports and services they need.

We may not see all the details of God’s plan and purpose on this side of eternity. We will see glimpses of it here and there, but it is in trusting that God has a plan that will help bring hope, purpose, and meaning to this special needs parenting journey.

“God showed how much he loved us by sending his one and only Son into the world so that we might have eternal life through him.” 1 John 4:9  NLT

Yes, my son was definitely onto something. Thank you God for Jesus!

May we be able to grasp God’s unstoppable, never-ending love for each of us this Holy Week and always. 

Bio: Jenn Soehnlin is a middle school English teacher and mother to two boys who are precious blessings and who both have special needs. She is the author of Embracing This Special Life: Learning to Flourish as a Mother of a Child with Special Needs.

Jenn enjoys blogging about faith, praying Scripture, and special needs parenting at www.embracing.life. You can join her Facebook group for special needs mothers Embracing This Special Life for online support, community, and encouragement. 

4 Steps for Navigating Fear

In last week’s article, I shared how fear serves an important role and acts like the warning light on the dash of our car.  How did last week go? Did you recognize this warning light going off in yourself, your spouse, or child?

If your answer is yes, then you may be wondering what to do. Here are four steps to help you navigate your fear and for you to help your family members navigate their fears:

1.     Pray & remind yourself of who God is:

Take a deep, slow breath or 20 and share your fears with your heavenly father. Ask Him for His peace and wisdom. Remind yourself of those truths in God’s word about who He is and His character. For example, He is sovereign and all knowing.

2.     Develop & implement a plan:

For example:

1. Determine steps needed to protect your family from getting sick, such as limit social interaction, wash hands, etc.

2. Establish a new routine – after being somewhere, get in car and use hand sanitizer on hands, inside door handle, phone and wallet before touching the steering wheel

3. Check into alternative options to meet medical needs, if the need arises

4. Think of alternative solutions for social engagement

5. …..

This will not be a one and done plan. As you implement it, you will need to revise it to better meet your family’s needs. There will be items on the list that you won’t have immediate solutions for but part of your plan may be steps to find those solutions.

3.     Find a community:

Fear becomes more paralyzing when we go through it alone. Find a community that gets it but be aware of the culture of that community.  You become like the people you spend the most time with. If the community is negative and not hope-filled, that will feed your fear and not reset it.

As a side note, if this is a need that you see in your life, I would like to invite you to join the Hope Anew Online Community. This is a great time to join as we have waived the membership fee. You can learn more at HopeAnew.com

4.     Look for ways to bless others:

When we look for ways to be “Jesus with skin on” to others, it can take our focus off ourselves and we can receive joy as we encourage others.

During this time you may need to be creative but it can become a fun family project.

As you are figuring out how to navigate this new season, remember that God is with you. He loves you and your family. He will never leave you and never forsake you.

Written by Jonathan McGuire

Jonathan McGuire  is  the father of two sons and the co-founder of Hope Anew, a nonprofit that comes alongside the parents of children impacted by disability on a spiritual and emotional level. You can follow Hope Anew on Facebook here.

Hope Anew has launched the Hope Anew Online Community and would love to have you be a part of it! You can learn more at www.HopeAnew.com.  Due to COVID-19, Hope Anew is waiving all membership fees for the community!

Written by Jonathan McGuire

5 Simple Activities To Talk About Big Feelings

Covid-19 has stirred up some big feelings. What is happening in our own communities and around the world is so very unexpected and unusual it is difficult to work through the emotions that have come along with all this change. Talking about feelings, naming them and acknowledging them together can be incredibly helpful at times like this. But where can we begin?

Knowing where something hurts, or what emotion is being felt doesn’t come instinctively to some members of my family and I find myself reaching for creative ways to get the conversation going to help me to support my children through this time where I’m sure they’re wrestling with huge emotions – fear, disappointments, worry, uncertainty in all the changes, helplessness, out of control. Talking together gives a chance to bring myself alongside and support more closely, and for us helps us to pray more specifically having talked about how we’re doing.

Here are 5 simple activities to help us talk about big feelings:

1. Out of control get a large piece of card or paper and draw a big circle in the middle. Using old magazines to tear out words and pictures, and pens to draw and write fill the circle with things you can control and outside the circle with things out of our control. Picking one of the things in our control that we could act on can even bring some relief to the big feelings.

2. Body mapping – make gingerbread cookies talking about what each part of your child’s body might be feeling like right now. While they’re cooking maybe draw round the cookie cutter and mark the parts of the body that feel different (like butterfly tummy, or aching head) and be detectives together to work out what emotion might be making our body feel that way.

3. Playdough faces – use Playdough to make faces with different expressions. Make one for how you are feeling today.

4. Color– Get out some paint and paint those feelings – what kind of character are they, what do they look like, what color are they?

5. ·Charades– play emotion charades, taking turns to act out and guess emotions. Have a good laugh together and then chat about which one each of us have felt recently.

I hope these ideas are as useful to you as they have been to us. These are unsettling times for us and our children and anything that can help me to stay closely alongside, ready to help and support seems to be a worthwhile thing – I guess chatting with them about their big feelings is inside my circle of control!

Written by Cathy Porter

Cathy Porter is  a disciple of Jesus, a mum, ordained and a vicar's wife (in the Church of England), a writer, a creative, a blogger.

Cathy and her husband, Andrew, have 3 children. Her two girls both a diagnosis of ASC. You can follow the ups and downs of family life & faith on her blog: www.clearlynurturing.wordpress.com.

It is Cathy’s heart to encourage families to share in the adventure of faith together, especially families beautifully shaped by ASC. She loves to write stories that make the reader think, ask questions about what we believe, and help the reader to discover what the Bible has to say about God and friendship with him. 

Is It Okay To Fear?

Is it okay to fear?

This is a question I keep finding myself asking, especially with the current COVID-19 pandemic. As I talk with other people and watch posts on social media, I see an unspoken tension between families who are fearful about the current health pandemic and those who say, “Do not fear and be courageous.”

Families fear for their parents or spouses that fall in the high risk category. Mothers are fearful for their spouses and children who have “essential” jobs and still have to go out. Parents are fearful of losing their jobs or how to provide for their families if they have lost their jobs. Moms and dads are fearful of how to protect their medically fragile children and make sure they have what they need whether that is medication, special equipment or even special food for restricted diets.

I remember standing in church singing, “There’s No Fear In Love.” This is a direct quote from the first sentence 1 John 4:18. The entirety of this passage reads:

"There is no fear in love. But perfect love drives out fear, because fear has to do with punishment. The one who fears is not made perfect in love."

Every time I sang this song, I would internally scoff and think, “Really…no fear.” Then I would get irritated as I thought of those who received a new diagnosis for their child and were scared or found themselves in a situation that was out of their control such as a job loss, cancer diagnosis or myriad of other fear inducing scenarios. I would half-heartedly sing through the song and move on.

If you look at the verse leading up to 1 John 4:18, it says the following:

“This is how love is made complete among us so that we will have confidence on the day of judgment: In this world we are like Jesus.”

“There’s no fear in love” refers to the day of judgement. Those who have a relationship with God through His son, Jesus, do not have to fear on the day of judgement.

So back to the original question. Is it okay to fear? Yes…but. 

God created our emotions, including fear. Fear can serve a beneficial purpose. It can help trigger that fight or flight response. If a lion starts to chase you, fear pushes you to take action and to try to escape. It is like the warning light on your dash that tells you something needs to happen. If you ignore that low fuel light for long, you will find that your car will stop moving.

That light on your car’s dash makes you pause and put together a plan. You mentally go through the check list of determining how far you can go, when you will fill up and what gas station you will stop at to get gas. A plan is put in place.

Similarly, when fear lights up on our internal dashboard it should make us pause, figure out why it is showing up and then determine our response or action plan. 

You may be thinking to yourself, you said, “Yes…but” when you asked if it is okay to fear. What is the “but.”

Have you ever watched a YouTube video or National Geographic show where a giant predator starts to attack its prey and the prey freezes in place? This is when fear becomes bad. When fear becomes all-consuming to the point that we are frozen in inaction.

It is also bad when it becomes chronic. When we live in a chronic state of  “fight and flight”, our bodies will respond negatively. It will negatively affect our emotional, physical, and spiritual health.

So what can we do when we see that dash light? Next week we will look at four steps to walk through when we start to feel fearful.

As you look at how you are doing during this time, are there any dash board lights going off? If you are married or have children, do you see any warning lights going on with your family members?

Written by Jonathan McGuire

Jonathan McGuire  is  the father of two sons and the co-founder of Hope Anew, a nonprofit that comes alongside the parents of children impacted by disability on a spiritual and emotional level. You can follow Hope Anew on Facebook here.

Hope Anew has launched the Hope Anew Online Community and would love to have you be a part of it! You can learn more at www.HopeAnew.com. Due to COVID-19, all membership fees have been waived.

The Prayers You Say Waiting at the Food Counter

“And those servants went out into the roads and gathered all whom they found, both bad and good. So the wedding hall was filled with guests.” (Matt. 22:10 ESV)

One of the most challenging things to do as a special needs parent is to take your child out to crowded public places, specifically restaurants, as there is frequently a great deal of stimulus and activity. There are also lots of variables, even when you go to a place you’ve been to before and your child is experienced with, as everyday can bring something different. But when you go to a completely new place, then it can quickly feel like the whole world is up for grabs, and you do your best to try to assess the situation quickly.

One recent weekend, I found myself in a new restaurant with my son and while I was excited to eat there with him, I realized the difficulties that were going to come with it soon after we entered.

It was relatively empty with only a few tables being used in the main dining area, but I still chose a table as far back as possible as I have become accustomed to, and told him to wait while I ordered the food. I raced up to the counter and began to scan the rather full menu and made choices as quickly as possible, when all of a sudden I heard a peculiar sound. I turned to the side to glance over at my son, assuming the worst, and standing there I observed my son having opened a folding door near our table. The folding door covered up some mechanical things in the restaurant and he had become very curious with the machinery, and the folding door. I quickly put my order in, paid and ran back over to my son to let him know to stop and he couldn’t do that, but the whole time in between the ordering and getting back to the table seemed like forever. I could have easily just screamed across the restaurant at him but I didn’t want to embarrass him, yet I couldn’t help but start to feel embarrassed anyway. 

I went right back up to the counter to wait for the food, and grabbed all of my necessary cutlery and napkins and such, and went right back to the table while we waited for the food to arrive, changing the apps on his Ipad to keep him distracted. The food came a few minutes later and that instantly calmed him, as usual, and we proceeded to have a relaxing time. That is, until it was time for him to be done, and after sitting for an extended time deciding  he was done and needing to get up and walk. I promptly cleaned up and we went to the bathroom and left, getting through another meal the same way we usually do, but also grateful that we didn’t have a scene with him opening the closet door earlier. But as we walked out I remembered that not one person made a comment to us the entire time we were there, and I considered that maybe even after all these as a special needs parent, I still struggle. 

I struggle with my son being called out for bad behavior, or actions that just don’t look normal, or with myself for appearing like some frantic parent who can’t handle their child. But the fact remains that when no one makes those comments, and when we can get in and out of a restaurant without a comment or even a look, I wonder to myself, am I trusting the prayers I say while i wait at the food counter? Am I believing in the God I pray to that he is hearing me when I struggle with those experiences, and remember the power in the prayers that I say when I need his help the most? It is a solemn wake up call for me, that the God I pray to once reminded us that all should be invited to the wedding feast, so that every table, and every heart, was full.

Written by John Felageller

Connect with John on his Facebook page: www.facebook.com/johnsspecialneedsblog/